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  • My diagnose:
    3 years, 11 months, 21 days ago

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Multiple myeloma has influenced my holidaybehaviour

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September 2010
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Brought everything, but….

We brought everything, didn’t forget a thing…. But when it was time for a shave…..

Brought everything, but....

Fiets on the beach

On 500 meter from the camping we find this beach….. Vendee is soooo perfect!!!

Fiets on the beach

Now this is what I call holiday!!

We’ve been here for less than an hour, it has been raining all day… The sun is shining and it’s 23 degrees centigrade, lovely weather! Lovely place! My wifi is working fabulously even in my caravan… It’s all too much!!!

Now this is what I call holiday!!

It’s over…

It's over...

It was fun. As a small country you reach the finals of the WC soccer . Everything turns to orange  and brotherhood spreads. Yesterday was a moment of contemplation though. I see people deeply disappointed and I can’t help thinking: Well…. there are other things. I think of my fellow patients who have to deal with other things than losing the final. I think that is the most important lesson I learned these last 4 years: everything is relative. I think I’m not the only one who is able to value certain things in life. It’s over, but life goes on…..

Fellow myeloma day #2

It’s been a long time since we spoke live. Bas and me we volunteer for our patients-platform, we administrate the website. There was work to be done, so we sat in the shade of his backyard which was very nice. It was a pleasant afternoon. Besides talking about tweaking the website, we took the time to share the some insights about our multiple myeloma.

Beautiful…….

iPad magic

Thanks, Seona!

Wet boat

It could have been so much fun… For days it has been warm and dry… All the way from Enschede, Jan & Marlies drove, for hours…..We were supposed to have something cool in the shade and go for a little boat ride….  Did we have showers for three hours…. When they left the sun started shining again…

It was nice this myelomablog get together, but it could have been so much nicer…..

Wet boat

Results of june 8th

My m-proteins are stable, I’m happy to say. According to graph which is tweaked a little bit, my values are about the same.

Graph june 8th 2010

Fathersday in HMH

It was a wonderful evening, last night in the Heineken Music Hall. Just like last week we were six of  us enjoying. The Newzealanders  were obviously in a good mood. Their soccer-team had “won” a draw against Italy and you could tell by the happy faces (see picture). A fine concert, I was happy to wear my hearing protectors, to avoid further damage to my ears. I must be very careful with what’s left.

A lovely way to spend fathers-day in short!! You must watch this

Crowded House