Today my pause-week started. No Revlimid for 7 days. The cure I take now wears me out completely. Much trouble with my digestion system and completely exhausted. They say you get used to it, but I still have to experience that. Optimistic estimates say that after 2 months the effect are less problematic. We’ll see, but [...]
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It felt good, letting it all out yesterday. I was sitting in the very inspiring waiting room, a space without daylight, filled up with dirty orange chairs. Every optimist would get depressed in a context like that. The only ray of light was the free wireless internet, which I used to kill the time. When you are [...] It was “nasty medical tests” afternoon. It all started with a bone marrow puncture and bone biopsy. For most of my fellow myeloma buddies it’s a well known story. After anesthesia of the outer cortex a small hole is drilled in the hip with Jamshidi needle. Then a sample of bone marrow is sucked up and [...] From today no more pills (for the time being). I can stop my daily doses of Broxil and Zelitrex starting now! That’s nice and I’m going to enjoy it to the full, cos’ you never know how long this pillsilence wil last. For the results of my m-proteins I will have to wait a while. I [...] My m-proteins are stable, I’m happy to say. According to graph which is tweaked a little bit, my values are about the same. Graph june [...] Today I visited the throat nose and eardoctor. I still get the feeling that my ears are closed in a certain way. That didn’t seem to be the case. Sinuses ok, my nose was straight in an unnatural way. Now you hear it from an expert… This was cause by my nose-job 40 years ago. I [...] Today I will use the free wifi in my hospital waiting room, to update my web log. I’m still as good as deaf. Counting 31 days today, since my ears let me down. The nose spray I got a fortnight ago didn’t do the job. Yesterday I got an appointment for the nose- throat- and ear-doctor. [...] The last time I had to wait so long, I decided to bring a toy. I’m typing on it right now. A tiny EeePC. During my last visit I read that my hospital offers free wifi access.The only thing you need to do is fil out your name and mobile number and you will have 24 [...] This afternoon I had a call from my hospital. After two weeks of slight anxiety I got the results. The m-proteins of band 1 are 2,0 and this time there was also a value for band 2. This read also 2,0. These were good results, because I should not add these two bands together. My hematologist [...] It’s almost unbelievable…. my m-proteins have gone down. Better news is almost impossible. Time [...] |
My name is Sander van der Pol, born in 1951. In august 2006 I was diagnosed with multiple myeloma. In my blog I write about my life with MM. I would be happy if you leave a comment or an email. To your health! sander@sandersblog.nl 
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