Today my pause-week started. No Revlimid for 7 days. The cure I take now wears me out completely. Much trouble with my digestion system and completely exhausted. They say you get used to it, but I still have to experience that. Optimistic estimates say that after 2 months the effect are less problematic. We’ll see, but [...]
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It’s 3:00am. According to my schema I take my 7th dexamethasone in about 6 hours. This morning I was red as an Indian and I itch all over my body. After 2 hours my sleep medication had worked out and I followed my clock about an hour. Then I decided to go downstairs. Els’ alarm will [...] It felt good, letting it all out yesterday. I was sitting in the very inspiring waiting room, a space without daylight, filled up with dirty orange chairs. Every optimist would get depressed in a context like that. The only ray of light was the free wireless internet, which I used to kill the time. When you are [...] Most of the time I’m able to look at myself with some distance. I write about nasty things, but I always try to end it with a positive twist. This is more pleasant for people who try to follow me. There’s a danger that all thing are not like they really are. Today I’m going to [...] It was “nasty medical tests” afternoon. It all started with a bone marrow puncture and bone biopsy. For most of my fellow myeloma buddies it’s a well known story. After anesthesia of the outer cortex a small hole is drilled in the hip with Jamshidi needle. Then a sample of bone marrow is sucked up and [...] I started today. I just took my first pills. Dexamethasone 40mg and Lenalidomide 25 mg, accompanied by a Proton pump inhibitor and blood thinner to prevent DVT (deep vein thrombosis). This is strong medication in high doses. My experience with dexa were not very positive, it makes you hyper and it can cause mood changes. To [...] My right-shoulder has been troubling me for a long time. In February I asked my hematologist to check my skeleton status that was made in December 2009. No problems visible, so I pay weekly visits to my physiotherapist since march. There was not much change for the better, I took diclofenac, didn’t help much either. Tried [...] From today no more pills (for the time being). I can stop my daily doses of Broxil and Zelitrex starting now! That’s nice and I’m going to enjoy it to the full, cos’ you never know how long this pillsilence wil last. For the results of my m-proteins I will have to wait a while. I [...] It's over… It was fun. As a small country you reach the finals of the WC soccer . Everything turns to orange and brotherhood spreads. Yesterday was a moment of contemplation though. I see people deeply disappointed and I can’t help thinking: Well…. there are other things. I think of my fellow patients who have to [...] It’s been a long time since we spoke live. Bas and me we volunteer for our patients-platform, we administrate the website. There was work to be done, so we sat in the shade of his backyard which was very nice. It was a pleasant afternoon. Besides talking about tweaking the website, we took the time to [...] |
My name is Sander van der Pol, born in 1951. In august 2006 I was diagnosed with multiple myeloma. In my blog I write about my life with MM. I would be happy if you leave a comment or an email. To your health! sander@sandersblog.nl 
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