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It felt good, letting it all out yesterday. I was sitting in the very inspiring waiting room, a space without daylight, filled up with dirty orange chairs. Every optimist would get depressed in a context like that. The only ray of light was the free wireless internet, which I used to kill the time. When you are [...] Most of the time I’m able to look at myself with some distance. I write about nasty things, but I always try to end it with a positive twist. This is more pleasant for people who try to follow me. There’s a danger that all thing are not like they really are. Today I’m going to [...] It was “nasty medical tests” afternoon. It all started with a bone marrow puncture and bone biopsy. For most of my fellow myeloma buddies it’s a well known story. After anesthesia of the outer cortex a small hole is drilled in the hip with Jamshidi needle. Then a sample of bone marrow is sucked up and [...] I started today. I just took my first pills. Dexamethasone 40mg and Lenalidomide 25 mg, accompanied by a Proton pump inhibitor and blood thinner to prevent DVT (deep vein thrombosis). This is strong medication in high doses. My experience with dexa were not very positive, it makes you hyper and it can cause mood changes. To [...] My m-proteins are stable, I’m happy to say. According to graph which is tweaked a little bit, my values are about the same. Graph june [...] The last time I had to wait so long, I decided to bring a toy. I’m typing on it right now. A tiny EeePC. During my last visit I read that my hospital offers free wifi access.The only thing you need to do is fil out your name and mobile number and you will have 24 [...] Press Release − Science This afternoon I had a call from my hospital. After two weeks of slight anxiety I got the results. The m-proteins of band 1 are 2,0 and this time there was also a value for band 2. This read also 2,0. These were good results, because I should not add these two bands together. My hematologist [...] It’s almost unbelievable…. my m-proteins have gone down. Better news is almost impossible. Time [...] Today it was time for my 6 week check-up. No breaking news, labs just fine. Next week I will be called with my m-protein values, that always takes some time. This gave me the opportunity to go through the options. Should the m-proteins rise as they do now, so almost double every six weeks, it’s time [...] |
My name is Sander van der Pol, born in 1951. In august 2006 I was diagnosed with multiple myeloma. In my blog I write about my life with MM. I would be happy if you leave a comment or an email. To your health! sander@sandersblog.nl 
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